Alek: From Sudanese Refugee to International Supermodel
CHAPTER 1
After I was born, the seventh of nine children, my mother and
I returned from hospital to her simple string bed, in a cement block
house in a little town called Wau. My parents named me
Alek, after one of my beloved great aunts. Alek means ‘black
spotted cow’, one of the most common and well-loved types
of cow in the Sudan. It’s also a symbol of good luck for my
people, the Dinka. I got my long body from my father – I’m
nearly six feet tall – and my mother gave me my smile. My
inky skin came from both of them.
When a child is born to the Dinka the family has a party.
When I was born, family and friends came from all over,
thanks to the bush telegraph. There were very few telephones
where I grew up, so my father mentioned my birth to someone
at the market. And that woman told a man who was
delivering rice to a place up the road. He told someone there,
who was taking a herd of cattle south towards the villages.
And pretty soon the news of my birth had spread far and
wide. Some of my relatives travelled for hours in the backs of
trucks, or walked across miles of barren landscape to reach our
home.
The women got together and made oils and perfumes from
herbs and bark, which they soaked for days and mixed in special
ways that only the elders know. As my mother tells it, the
house was filled with women in their traditional robes and
everything smelled wonderful. For two days these women
cared for my mother and me. They fed her a special porridge
and chicken soup, and wiped her brow with damp cloths. She
didn’t have to do anything but lie back, take special baths and
luxuriate in sensual smells. Then the men brought a black goat
to sacrifice, according to our tradition. Everyone ate good
millet cakes and other sweets, which were such a rare treat in
my family. As custom dictated, my mother stayed in the house
for forty full days and nights after she gave birth to me.
It was a rare moment of peace in my country, and I was
blessed with a very special welcome into the world. A Dinka
welcome.
My people have lived in the southern Sudan for thousands of
years. We’re related to two gracile East African groups, called
the Neur and the Masai, that make up the Nilotic people, who
are known for their dark skin and tall, lean bodies. There are
about twenty Dinka tribes altogether, and each is divided into
many smaller groups, with villages spread over a huge area. My
family is from the region called Bahr al Ghazal, in the southwestern
part of the country. Bahr el Ghazal is also the name of
a river that meanders through the swamps and ironstone
plateaus until it joins the White Nile at a lake called, simply,
No. The White Nile goes on to meet the Blue Nile at
Khartoum, and proceeds from there to Egypt in the river we
know as the Nile.
Based on the stories my parents and grandparents told, it
seems that the Sudan has always been a violent land. In the
eighteenth and nineteenth centuries slave traders came through
this territory, nabbing Dinkas and others and taking them
north to be sold in the Arab countries. It is said that children
from the south have even been enslaved and sold in the
twenty-first century.
The main thing to understand about my country is that it
has always been split between the Islamic Arab north and the
Animist and Christian south. They don’t ever seem to mix that
well and the north has always tried to dominate the south. The
British, who ruled the Sudan from the late nineteenth century
until the 1950s governed the north and south separately, but in
the 1940s, just before independence, the British gave in to
pressure from the Islamic leaders in the north to unite the
country. The northern government then proceeded to impose
Islamic culture on the southern people, most of whom who
weren’t Muslim or Arabic. Of course, there’s money involved
too. The Sudan’s vast oil fields are in the south, along with a
lot of fertile land and water.
The south has never wanted to be dominated by the
Muslims in the north; in 1950 a brutal civil war broke out and
lasted until 1972. Then, in that year, both sides signed the
Addis Ababa Accord, which guaranteed autonomy for the
southern Sudan. I was born five years later.
Since we’ve always been semi-nomadic, totally dependent
on the weather and whipped by the forces of political change
around us, the Dinka are used to living through cycles of wars
and uprisings followed by peace and prosperity, hunger and
then bounty. In the wet season rural Dinka out in the villages
live in conical, thatch-roofed huts, growing millet and other
crops. In the dry season they take their cattle to riverside
camps. Us Dinka are born expecting change.
The Dinka have never had a central government or anything
like that, except those imposed on use by the leaders of
the Sudan. Instead, we are divided into clans, which are based
on families, and Dinka are very aware of which clan they
belong to. Some of the more important clans will have leaders
who influence the whole tribe. But in general, the clans are
split into smaller groups and each of these will have control just
enough land to provide water and pasture for their beloved
cattle.
These animals are so essential to the Dinka that even though
my parents raised us in a small, relatively cosmopolitan town
called Wau, far from their home villages, my mother still kept
about fifteen head of long-horned cattle in our courtyard.
Like my father Athian Wek, my mother Akuol Parek grew
up in a thatched hut in a village south of Wau. My mother has
a different name because in our culture children always take –
and keep – their father’s name. By the time my parents married
the civil war between the north and south was in full force and
they had to flee. They roamed eastern Africa, living for long
periods of time in refugee camps and towns and cities in Chad,
Kenya, the Central African Republic and elsewhere. That was
just how life was for them. They had to build a life on the run,
so the speak.
My mother gave birth to her first children while she was in
exile. When peace eventually came to the south my parents
returned to the Sudan and settled in Wau, which was then a
town of about seventy thousand people, roughly three hundred
miles from the Ugandan border. They chose Wau because it
was relatively sophisticated, compared to the villages where
they had grown up. While they had a deep respect for their
Dinka inheritance, their time as refugees had shown my parents
more of the world than they would otherwise have seen.
They realized that they wanted their children to have a good
education and the freedom to marry who they wanted: most
marriages in the villages were arranged. In fact, my mother
defied her parents to marry my father, who wasn’t deemed to
come from a family that was wealthy enough. My parents saw
that the Sudan, and the world at large, was in the midst of a
great transition and they wanted us to be raised free from some
of the more restrictive Dinka tribal customs – such as
polygamy and facial scarring – so we could prosper in the
modern world. They chose to settle in Wau which, while
having a large Dinka population that was respectful of its tribal
customs, had good schools and businesses.
Wau had originally been settled by slave traders in the nineteenth
century, but had become a centre for trading cotton,
tobacco, peanuts, cereals, fruit and vegetables, and also had a
few small workshops. I loved walking by the blacksmith’s shop,
where the smiths forged metal over fires built into holes in the
ground. They’d heat the metal until is was glowing red and
then bang it with a hammer.
A lot of Dinka lived there, but so did a lot of Fertit, Jo-Luo,
and Arab Muslims from the north. It is a diverse place, where
people really get along – at least when they aren’t at war with
each other. Much of the town was destroyed in anti-government
riots in 1965. The government rebuilt the buildings,
including a strategically important airport, after the peace
treaty of 1972. There was one modest hotel and a little
cinema. By the time I was born, in 1977, Wau was a nice small
town where women shopped for food in the market and vultures
prowled the streets looking for scraps.
I grew up in what was considered a middle-class family in
Wau. The middle class was fairly large in the town and was
mostly made up of doctors, teachers and government workers
who lived in houses made of stone and zinc. There were plenty
of people poorer than us, who lived in neighbourhoods where
the houses had thatched roofs and the adults worked in the
fields or did other hard labour. There weren’t that many people
who were richer than us, aside from a handful who owned local
factories or other businesses. I always felt very comfortable with
what we had, although most people in Europe or America
would have called us poor, since we didn’t have electricity or an
indoor toilet, let alone a stereo, a TV or any kitchen appliances.
We had enough to eat, a solid house and simple clothes. For
that we felt fortunate. Before I was born Wau had running
water, but the government cut if off at some point and the
system fell into disrepair. After that, everyone had to rely on
well pumps. It wasn’t a bad life at all. You just had to know how
to make the most of what you had. We painted an old oil drum
in our yard in bright colours and used it to collect the rain that
fell on our roof. That rainwater tasted delicious.
My father Athian worked at the local board of education.
He left the house each morning wearing a suit and tie and carrying
a black leather briefcase. He was a very stylish man,
about six feet, five inches tall, slender and handsome. A real
gentleman. He didn’t talk much, but when he spoke he was
always straightforward. He expected you to listen to what he
had to say and I learned early on that even though he was usually
easygoing he wasn’t one to mess with.
I remember once, he told me to go out and sweep the
veranda, but I refused. Without a word he stepped into the
yard, pulled a switch from a bush, and made me stand in front
of him as he peeled off each leaf and twig to make a good
whip. Then he lashed the backs of my legs three times and told
me to never disobey him again. I don’t think ever I did.
My mother Akuol was always talking, always smiling, but
she was also strict. My parents were a good match. They’d
known each other since they were teenagers and a deep river
of trust ran between them. Dinka men can sometimes be
domineering, and my father was no slouch as the man of the
house, but he was different from other Dinka men. For
instance, he chose not to be polygamous, even though he
could easily have done so since taking multiple wives is
accepted – even expected – in Dinka culture. He always consulted
my mother before making big decisions. They were a
real team. Except when it came to money. In that respect my
mother was the dictator of the family. On payday my father
would hand his money straight over to her and she would
organize the rent and buy the food.
A few times a year she would take us to the market to buy
clothes. Sometimes they would be new; other times we’d buy
from the vendors who bought used clothes by the pound and
sold them by the piece in little towns like ours. These are the
same clothes that people in wealthy countries dump into collection
boxes. We would often wear strange shirts advertising
Manchester United football team or Jimmy’s Rib Joint in
Harrison, Kentucky. We didn’t care: the clothes were inexpensive
but well made and we couldn’t read much English anyway.
My father was so tall it was difficult to find clothes to fit
him. My mother would pick up some fabric swatches from a
vendor in the market and they would decide whether he
wanted a lightweight suit or one in a more formal fabric,
checked or striped, and then they’d go to the tailor.
In the evenings my father would sit in a shaded chair on the
veranda and have a cup of tea while he listened to the BBC
World Service on his little battery-powered radio. Sometimes
I would sit with my father and listen to the radio, but usually
my mother would intervene and tell me to finish my homework.
Education was very important to my parents and my
father would back her up completely.
‘What did you learn today?’ he asked me every night at
dinner. ‘Did you learn how to rule the world?’
‘No,’ I would have to say.
‘Well then, get in there and do your homework.’
And that’s what I did.
We lived in a two-bedroom house with a veranda and a
walled-in courtyard with a garden and space for the cows.
There were four boys in the men’s bedroom with my father
and five girls in the women’s bedroom with my mother.
The boys were: Athian, who was born in 1961, when my
parents were refugees in Liberia; Wek, who was born somewhere
between Liberia and Zaïre in 1966, when my parents
were on the move as refugees; Mayen, who was born in
Liberia in 1969, and Deng, who was born in Wau in 1982.
He’s the tallest of the bunch now, at six feet and seven inches,
compared to my measly five feet, eleven-and-a-half inches.
Besides me, the girls were: Ajok, who was born in Uganda
in 1964; Adaw, who was born in Uganda in 1972; Akuol, who
was born in Uganda in 1974 and given our mother’s name;
and Atheng, who was born in Wau in 1979.
By the time I was a young girl Ajok, Wek and Athian had
grown up and left home, either to study in Juba, near the
Ugandan border, or to live in Khartoum. When I was nine
years old Ajok was living in London with her husband, a
Sudanese man who was training as an architect over there.
There were still plenty of us children to keep our parents busy.
Our yard consisted of hard-packed dirt, which kept snakes and
other animals away. There were papaya and mango trees out
there, and my mother kept a few rows of okra and tomato
plants. There was no plumbing or electricity so we used an
outhouse in the courtyard, with newspaper or leaves instead of
toilet paper. In the kitchen there were a few stew pots and a
griddle. Our rooms were furnished with stools and chairs, and
we slept in beds made of woven string.
I can’t say that we had much in the way of luxuries, except
that we had more than a lot of people. Poverty is relative and,
compared to many people, those who sometimes had trouble
putting food on their tables, we were doing really well. Yet we
also had neighbours who had generators for electricity, hot
running water and other comforts we couldn’t imagine having.
The truth was, we never thought about these things. We rarely
feasted but we never went hungry. We always had clothes, even
if they were hand-me-downs.
I grew up in the typical Dinka way, following my mother
from here to there until I started school. She had a strong
entrepreneurial spirit, and was constantly trying to make
money on the side. She always had something growing in the
garden that she’d sell. Or she would lease land and raise crops
such as peanuts to sell in the market. She even brewed liquor
in a makeshift still. People loved to buy her liquor, which was
pure and strong and tasted good – so they said. She never
drank it and I never tried it. My father did, however.
Occasionally he would meet his friends for a drink or two. My
mother would always be furious with him.
‘What did I tell you?’ she’d shout. ‘What are you drinking
for?’
My dad would just kind of smile and tell her that he’d have
a drink once in a while if he wanted to and if she didn’t like it
she should just go on about her business and let him be. He so
rarely drank it wasn’t really an issue, but my mother hated
people being drunk on principle. To her, it was as bad as being
lazy.
There was always work to be done. Every morning my
mother would get up before everyone else and milk her cows.
Then she’d wake us up and give us a cup of tea and a bit of
bread, which is usually all we had for breakfast – we never ate
more than two meals a day and often ate only one, or even
none, if money was tight or if nothing was ripe in the garden.
This was the accepted way to eat and nobody thought twice
about it. It takes a long time to die of starvation and I learned
early on not to complain if we were forced to miss a meal, or
even a few of them. A bit of hunger isn’t going to kill a person,
even if it does sap your strength and spirit. It certainly makes
you appreciate the food that you do receive. After drinking our
tea we would make our beds and tidy up the rooms. Then
we’d sweep the house and wash the floors before going out
into the yard.
‘Don’t forget to pick up the manure,’ my mother would say.
Now, the Dinka have a special relationship with cows and so
the thought of picking up manure isn’t such a bad one for us.
Cow dung is really quite clean – after all, it is just grass and
water. And it’s not just the dung. Sometimes, a village boy
herding cattle will stick his head under a cow when it’s urinating
so that the liquid goes over his hair and body. That’s
because cow urine kills lice and keeps mosquitoes away. It’s just
a different way of looking at the world. If you think about it,
isn’t that boy clever to take care of his infestation that way,
since medicines and insecticides are so scarce in the countryside?
It didn’t really bother me to reach down and pick up the
manure with my hands and throw it into a pile in the corner
of the yard. It didn’t even smell bad. We’d leave the manure to
dry while we went to school and then in the evening we
would burn it so the smoke would keep the flies and mosquitoes
away. Then we’d rub the ashes onto the cows’ skin to keep
the ticks at bay. Sometimes would use the ash – which had
been purified by being burned – as toothpaste. We didn’t have
plastic brushes in those days; we chewed on sticks until they
went soft and then we would rub them along our teeth and
gums. The sticks worked well on their own, but worked even
better with the powdered dung. Years later, when I was
twenty-six, I went to the dentist for the first time. He said that
I had incredibly healthy teeth, so I’m definitely an advocate of
sticks and dung powder for good oral health! Although I admit
that when I left Africa I started using a toothbrush and toothpaste,
since I no longer had cows.
My mother was full of love, and treated us well. In general,
Dinka children are expected to listen to their elders and keep
their mouths shut. This is especially true in the villages. My
parents were usually pretty easygoing and didn’t demand too
much of us, but they did expect us to be respectful. My
mother loved us but raised us with an iron fist – sometimes
backed up by a stick she’d use to if we got too far out of line.
Still somehow, when I was young, I got it in my head that I
could do what I liked. I was a tomboy, always climbing trees
and walls and sometimes I just wouldn’t listen. I liked a girl
called Sarah who lived near us neighbour and sometimes I’d
sneak out after dark, climbing over the back walls until I got to
her house, so we could play games and sing songs in her yard.
One night I came home streaked with dirt form the packeddirt
walls and my mother said, ‘Look at you, you’ve ruined
your clothes with all that climbing.’
She was angry. I ran and tried to hide but she wasn’t playing
around. She walked out into the yard and snapped a branch off
a bush. Then she found me hiding behind the rainwater barrel.
It all happened so fast my butt was stinging before I could run
again.
Being beaten like that was normal in my culture. Everybody
whipped their children to keep them in line. Most, like my
parents, would only do it when they felt it was absolutely necessary.
The teachers at school would do it too. It wasn’t until I
went to a school run by Italian nuns that I realised that not all
adults whipped children.
That school was my favourite. Like so many of the good
things in our town, it was operated by Christian missionaries
from Europe rather than by the government. These people
came from all over the world to help improve our lives, little
by little. The world knew that the civil war had destroyed
much of our country and had turned vast numbers into
refugees, many of whom ended up in Wau with few prospects
for the future. Aid organisations sent volunteers to help the
people who were in need. Often they were missionaries who
wanted to convert us to their religions, and many times they
succeeded, which was why there are so many Christian Dinka.
But some of the organisations didn’t bother with God talk and
just got on with simple plans to make things better. UNICEF
did one of the best things ever seen in Wau when they built a
series of well pumps across town. I’ll forever be grateful for that
clean water. I was lucky they built a pump near our house.
Many people in the Sudan walk for hours every day to collect
water, but we just had to go down the road.
As I got older, my mother started sending me to the pump
for water every morning and evening, which I enjoyed. I had
to stay at home after school, working or doing lessons, so
going to the well was one of the few times I’d get to see my
friends. We’d chat about things – our teachers, other kids – or
play games. Once, when we were playing, I was thrown in the
trough that collected the water and had to walk home soaking
wet. My mother didn’t like that.
More rarely I would be able to sneak off to a place that I loved.
Near the well, a path led up across the grass to the highest part
of town. Great spreading acacia trees shaded the trail and there
were tall lulu trees on the hill. Sometimes I’d see women gathering
the small lulu nuts. Later they would press the nuts to get
shea butter, which is prized as a moisturiser. There, on the hill,
I could see for miles across the vast plain that surrounded Wau.
I’d sit in the grass and scan the horizon for aeroplanes coming
in to land at the airport. The silver glint of sunlight hitting the
wings would mesmerise me and I’d lose myself in imagining
where the plane had been and what kind of people were on
board. Well-dressed foreigners from somewhere far away, I
knew. Farther than Khartoum. The other side of the world,
perhaps. I loved my home town, my family and our house, but
I also loved to imagine flying through the deep blue sky heading
somewhere exciting.
I knew what that was like because when I was only five I
flew in one of those planes, all by myself, when I was sent for
medical treatment in Khartoum. I’d had serious psoriasis all
over my body since I was baby. No one knew what to do
about it. It made my entire body itch and I’d scratch my skin
until it bled. Often it would get infected and ooze pus. There
were scabs all over my legs, arms and chest, even on my face.
The palms of my hands would get cracked and sore and it felt
better to keep them closed so the wounds didn’t stretch.
‘Alek, open your hands,’ my mother always said. ‘If you
keep them closed they’re going to heal that way and you’ll
never get them open again.’
She hated seeing me suffer. When I felt like crying from the
pain I would sneak off to a corner where she couldn’t see me,
because when she did she’d look like she was going to start
crying too. I even had it on the bottoms of my feet and walking
on the open sores just made it worse. Sometimes I could
see the meaty part of my flesh through the cracks, and all the
oozing liquid, and I’d feel so ashamed. But I just had to get
used to it. My skin turned ashy and white. My mother shaved
my head and rubbed Vaseline into my scalp to keep it from
flaking away.
It’s so strange that I grew up to make my living off of my
looks, after so many years of looking like a monster. I’m lucky
we didn’t have many mirrors.
My mother became desperate because nothing she did
helped. She dressed me in my only good dress, a cotton shift
with thin yellow and pink stripes and patch pockets, and we
walked down to a little wooden storefront near the market.
She rapped on the shutter that covered the window.
‘Yes, one minute, please,’ came the shopkeeper’s voice.
This wasn’t our usual store. The man opened the shutter
and peered at us with bloodshot eyes. Behind him were
narrow shelves lined with beer and liquor bottles. A plastic
bucket full of matches was on the counter, along with a tin cup
full of loose cigarettes.
‘Give me six cigarettes and a small bottle of the cane liquor,’
my mother said.
I was shocked.
‘But you don’t drink!’ I said.
‘And I don’t smoke, either,’ she replied.
‘What’s that for then?’
‘No need for questions from a little girl called Alek. That
little girl’s always got questions. You’ll find out in time.’
The shopkeeper wrapped the cigarettes in a piece of newspaper
and then did the same with the bottle before handing
them to my mother, who quickly hid them in her pocket.
We continued down the hill towards a part of Wau that I’d
always been forbidden to go near. It was on the far side of the
railway line, literally on the wrong side of the tracks. Country
people lived there, often in houses made of mud or even just in
tents of sticks and cloth. Children ran around naked in the dirt.
We came to a small farm, with yellow flowers growing off a
vine along the fence and herbs in pots near the porch of a little
wooden building.
‘Here we are,’ my mother said.
‘What?’
‘There’s a man here who’s going to look at your skin. He’s
got special powers.’
I felt so nervous my stomach got jumpy. Then I smelled the
goats: that sour, stale, stomach-churning goat smell. I could see
a herd of them and a bucket of goat’s milk sat on a rock in the
sun collecting flies. I wanted to throw up.
My mother called out.
‘What do you want with me?’ came a man’s voice.
‘I came with my daughter,’ my mother said.
He opened the door and smoke from his cooking fire
drifted out. Then he followed the smoke, looking like something
out of a fairy tale. He had matted grey dreadlocks, a
wispy beard with beads plaited into it and yellowish eyes. His
raggedy clothes were held together with twine and he wore a
necklace of feathers. I was sure he was crazy. Why was my
mother bringing me here?
‘Look at you,’ he said, examining my forearm. ‘You need
help.’
He negotiated a price with my mother – she would bring
him a sack of peanuts. The smell of animals and smoke was
overpowering as we stepped into his dark house. Bright sunlight
filtered through cracks in the plank walls.
‘Tobacco?’ he demanded.
My mother handed him the cigarettes and the bottle of cane
liquor.
‘Stand,’ he said to me.
He took a handful of fresh herbs and shook them around
my body while he mumbled supplications to God, or the
Devil, who knew? Then he rubbed the herbs on my arms and
face to release the oils, before scraping my skin with a thin
wooden spatula. When he had finished he showed me a pile of
granules that he said he’d scraped off my skin. They looked like
rotten millet. It was disgusting and I knew it was all a trick. He
gave me a strange look, as if he knew exactly what I was thinking.
Then he took a swig of liquor and sprayed it out of his
mouth in a fine mist to coat my skin. He opened the newspaper,
took out a cigarette and examined the brand. He smiled.
My mother had brought the counterfeit Marlboros, which
were more expensive than the Sudanese brands. He lit the cigarette
and blew short puffs of smoke in my face, making me
cough. Then he inhaled a huge lungful of smoke, burning at
least a quarter of the cigarette. He let the smoke out in a cloud
and wafted his hands so it coated my body. ‘Done,’ he said.
‘Wait outside.’
I stood in the yard, itching my skin like crazy, until my
mother came out with a bag of herbs. All the way home I
forced myself not to scratch because I didn’t want my mother
to think she’d wasted her time and money on this witch
doctor. But I knew she had.
At home my mother steeped the herbs until they made a
thick, bitter drink that made me gag. For two weeks I dreaded
my morning dose of this concoction. Of course, it didn’t help
at all. My skin still bled and oozed and itched. She took me to
several other healers, each of them weird and a bit scary, but
none of them helped. I could see sadness and a sense of hopelessness
on my mother’s face.
Finally she decided I should go to Khartoum. My father was
there getting treatment for a broken hip. He’d accidentally
ridden his bicycle into a deep pothole one dark night on a
road not far from our house. The doctors in Khartoum
inserted steel pins into the bone to hold it together. My father
was staying with my uncle, who was a doctor, and my brother
Athian while he recuperated. My mother thought that if
anyone could help me my uncle could. She also thought it
would be good for me to visit my father. So, one morning she
packed me a little bag with a change of clothes and we walked
several miles out of town to the airport. There, she asked the
flight attendants to look after me and I walked out onto the
tarmac and climbed the stairs to the plane. The propellers
looked massive; I had no doubt that they would be able to
carry us aloft over the desert.
Inside, I sat in the most comfortable seat I’d ever known. I
could see the pilot in the cockpit with all the complicated dials
and buttons. It was exciting, but it was also hard to leave my
mother. Looking out of the little window I saw her at the edge
of the runway. I waved and waved but she never waved back.
I guess she couldn’t see me. We took off and flew high above
the vast plains to the city. Athian met me at the airport and I
stayed in Khartoum for months, visiting doctors who all said
my psoriasis was incurable. Finally my mother sent word that
I should return home and go to school. Back in Wau my skin
got even worse. We saw more witch doctors. Nothing helped.
When I was seven my mother somehow got me into a
German missionary hospital over an hour’s walk outside of
town, near the Jur River. The Germans were known for being
good with skin conditions so we thought they would be able
to find a cure. I remember that on one of my first days there a
German doctor took one look at me, said, ‘Oh my God,’ and
left the room. It was that bad.
I stayed in that hospital for a month. They rubbed creams
on my body and wrapped my legs and hands in bandages. It
drove me mad not to be able to scratch but that helped me
heal a little. The food was good and I rested in the sun. But I
was so lonely by myself. My parents came to visit as often as
they could, but it was too far for them to come every day. I
missed my mother so much. Sometimes she would stay at the
hospital for a few days, but not often as she had to look after
my brothers and sisters at home.
The hospital was like a maze, with rooms off of a veranda
and a hidden courtyard filled with flowers. It was really clean
and pleasant. Eventually my skin healed and they said I could
go home. I felt great. But as soon as I stopped the treatments
the psoriasis came back and I started scratching myself until I
bled. It was agony. I couldn’t squeeze a lemon without my
hands burning as the juice got into the cracks. The other children
would sometimes make fun of me. I hated it. I didn’t feel
normal.
I think that the years I spent suffering from psoriasis taught
me not to take beauty too seriously. Just looking at someone
and passing judgment like that isn’t really so meaningful –
saying someone is ugly or beautiful. Beauty is a much deeper
issue. I know, because I was ugly for much of my childhood,
and then my skin cleared up and people thought just the
opposite but I remained the same person, with an ugly side
and a beautiful side like everyone else. There was nothing substantially
different about me; my skin was just better.
Despite my psoriasis, I had a pretty good childhood. Often in
the mornings, if I wasn’t at school, I’d go to the market with
my mother to get vegetables and meat from the women who
brought their supplies in from the countryside on donkeys.
The meat could be really nasty, because they just cut it up and
laid it out on tables in the open air, with flies buzzing on it.
You had to cook it thoroughly to kill any parasites. There
wasn’t any choice, so we didn’t really think about it very much.
You could find anything at the market, even fat roasted
termites that people would crunch between their teeth like
potato crisps.
One of my favorite foods was a flatbread called kissra. To
prepare it you make a batter from corn or other grains, pour it
out onto a griddle and then spread the batter out with a palm
leaf. When it’s done you lift it off the griddle and stack it on
top of the others you’ve cooked, like American pancakes. The
bread is dipped into stews.
There was a stew called Ni’aimiya, made of onions, spices,
peanuts and okra or meat, sometimes with yogurt or milk
mixed in. There were other stews that I liked even more, called
waika, bussaara and sabaroag, which were made from dried okra
powder and sometimes had potatoes, aubergines and spices in
them. Our main, day-to-day food was a wheat or corn porridge
called asseeda. Sometimes my mother would serve the
porridge with a dried fish dish called kajaik.
For a special feast, we might also have elmaraara or umfitit,
which are made from sheep offal, onions, peanut butter and
salt and eaten raw. I loved the rare occasions when we had
soups such as kawar’i, made of cattle hoofs and vegetables, and
elmussalammiya, which is made from liver, flour, dates and
spices. We mostly drank tea or water, and possibly milk. Every
once in a while we’d have fruit drinks, which were made by
blending orange and lemon pulp with water.
My mother tells me that I had my own special diet when I
was a young girl: I liked to eat sand.
‘I’d find you licking it off the walls,’ she said. ‘I’d always be
catching you putting sand in your mouth.’
She thought the sand had caused my psoriasis, but I doubt
it. I don’t know why I ate sand. I know that some people eat
dirt and scientists say it’s a way for them to get the minerals
they need. I can’t really imagine it, but perhaps I was missing
something in my diet. Who knows? I felt it was a completely
normal childhood. Until the tanks came. When I was nine,
great rumbling convoys of army trucks draped with soldiers
entered Wau. Everything changed.